Living Well with Parkinson’s

Practical ideas to help you stay independent, confident and active in everyday life.

Living with Parkinson’s can affect everyday life in different ways. Movement may become slower, balance can change and tasks that once felt automatic may sometimes require a little more thought or planning.

However, there are many practical changes that can make everyday activities easier and help you maintain your independence for as long as possible.

This guide brings together simple ideas for staying active, moving around safely, adapting your home and choosing equipment that can make daily life more manageable.

Small changes can make a big difference

The right routine, a few changes around the home and suitable mobility or daily living equipment can all help reduce unnecessary effort and make it easier to continue doing the things that matter to you.

Important

Parkinson’s affects everyone differently. The information in this guide is general and should not replace advice from your GP, Parkinson’s specialist, physiotherapist, occupational therapist or other healthcare professional.

Staying Active & Moving with Confidence

Regular movement can help maintain strength, flexibility and balance, while also helping you feel more confident in everyday life.

Parkinson’s can affect the way you move. You may notice that walking becomes slower, your steps become shorter or starting and stopping takes more concentration than it once did.

Staying as active as you comfortably can is important. Rather than avoiding movement because it feels more difficult, finding safe ways to keep moving can help you maintain your independence.

Everyday movement tips

• Give yourself enough time and try not to rush.
• Concentrate on taking comfortable, deliberate steps rather than shuffling.
• Keep regularly used routes around your home clear of clutter and trip hazards.
• Wear supportive, well-fitting footwear.
• Take regular breaks if you become tired, rather than pushing yourself too far.
• Consider speaking to a physiotherapist if walking, balance or getting up from a chair is becoming more difficult.

If your feet feel “stuck”

Some people with Parkinson’s experience freezing, where their feet temporarily feel as though they are stuck to the floor. This can happen when starting to walk, turning, moving through a doorway or when feeling rushed.

If this happens, try not to force yourself forward. Stop, steady yourself and focus on restarting your movement. Some people find that counting, using a rhythm or imagining that they are stepping over a line on the floor can help.

Important

If you have experienced falls, significant changes in your walking or balance, or you are unsure which exercises are suitable for you, speak to your healthcare professional, physiotherapist or Parkinson’s specialist before starting a new exercise programme.

Making Your Home Safer & Easier

A few simple changes around the home can make everyday tasks easier, reduce the risk of falls and help you remain independent.

Parkinson’s can affect balance, coordination and the speed at which you move. Looking at your home with this in mind can help identify small changes that make moving around safer and less tiring.

You do not necessarily need major adaptations. Often it is the simple things – better lighting, removing trip hazards or placing frequently used items within easy reach – that make the biggest difference.

Simple changes around the home

• Keep walkways clear of loose rugs, cables and unnecessary furniture.
• Make sure hallways, stairs and entrances are well lit.
• Keep everyday items somewhere easy to reach to avoid unnecessary bending or stretching.
• Choose stable chairs with supportive arms that make standing up easier.
• Avoid rushing to answer the telephone or door.
• Consider handrails or grab rails where you regularly need extra support.

Think about falls before they happen

If you find yourself holding onto furniture as you move around, avoiding certain rooms or feeling less confident on your feet, it may be worth reviewing your home and the support you use. Addressing a problem early can often help you stay independent for longer.

A useful tip

An occupational therapist can assess how you manage everyday activities at home and suggest equipment or adaptations that may help. If you are experiencing falls or increasing difficulty around the home, speak to your GP, Parkinson’s team or local health and social care service about an assessment.

Making Everyday Tasks Easier

Simple changes to the way you approach daily activities can help conserve energy, reduce frustration and support your independence.

Everyday activities such as dressing, preparing meals or getting in and out of a chair can sometimes take longer with Parkinson’s. Giving yourself more time and finding easier ways to complete a task can make a noticeable difference.

The aim is not to stop doing things for yourself, but to make everyday routines work better for you.

Make daily routines work for you

• Allow extra time for activities so you do not feel rushed.
• Sit down for tasks such as dressing or preparing food when this feels safer or less tiring.
• Keep frequently used items within comfortable reach.
• Break larger jobs into smaller, more manageable tasks.
• Plan more demanding activities for times of the day when you generally feel at your best.
• Accept help when you need it while continuing to do the things you can safely manage yourself.

The right equipment can help

Daily living aids do not have to be complicated. Small pieces of equipment can sometimes make a surprisingly big difference to everyday independence.

Reaching aids, dressing aids, walking equipment, shower seats, raised toilet equipment and supportive seating are just some examples. What is useful will depend on your individual needs.

Important

Try not to buy equipment simply because it appears suitable for Parkinson’s. Everyone’s needs are different. If an everyday activity is becoming difficult or unsafe, an occupational therapist can help identify the most appropriate equipment or adaptation for you.

Reducing the Risk of Falls

Changes to balance, walking and movement can increase the risk of falling, but there are practical steps you can take to help stay safer and more confident.

Falls are not an inevitable part of living with Parkinson’s. Understanding where difficulties occur and making small changes to your surroundings, routines and mobility can help reduce your risk.

If you have already fallen, or have started worrying about falling, it is worth seeking advice rather than simply becoming less active.

Simple ways to reduce your risk

• Remove loose rugs, trailing cables and clutter from regular walking routes.
• Make sure stairs, hallways and entrances are well lit.
• Wear supportive, well-fitting footwear and avoid loose slippers.
• Take extra care when turning, changing direction or moving through narrow spaces.
• Avoid carrying too many things while walking.
• Stand for a moment before starting to walk if you feel unsteady after getting up.
• Use handrails and appropriate walking equipment if these have been recommended for you.

Have a plan in case you fall

Think about how you would call for help if you fell and could not get up. Keeping a mobile phone with you or using a personal alarm can provide reassurance, particularly if you spend time at home alone.

Important

Tell your GP, Parkinson’s specialist or physiotherapist if you have fallen, are falling repeatedly or have noticed a significant change in your balance or walking. They may be able to identify contributing factors and recommend appropriate support.

Getting Out & Staying Connected

Staying connected with friends, family and your community can be just as important as looking after your physical mobility.

Changes in walking, confidence or energy levels can sometimes make going out feel more difficult. You may find yourself thinking twice about journeys or activities that you previously took for granted.

A little planning, allowing more time and using the right support can make it easier to continue seeing people, enjoying hobbies and doing the things that are important to you.

Make outings easier

• Allow plenty of time so you do not need to rush.
• Plan where you can stop and rest on longer outings.
• Check accessibility before visiting somewhere unfamiliar.
• Choose quieter times if busy or crowded places make moving more difficult.
• Keep a mobile phone with you when going out alone.
• Tell someone where you are going if you are concerned about your mobility or balance.

When walking distance becomes difficult

Needing help with longer distances does not necessarily mean you have to stop going out. A suitable rollator, wheelchair, powerchair or mobility scooter may allow you to conserve energy and continue enjoying longer trips.

Think of mobility equipment as a way of extending what you can comfortably do, rather than simply replacing walking. The right solution should suit your ability, lifestyle and the places you want to visit.

Remember

Independence does not always mean doing everything without help. It is about having the confidence, support and equipment you need to continue making your own choices and doing the things that matter to you.

Rest, Sleep & Managing Fatigue

Tiredness can affect everyday life with Parkinson’s. Finding a balance between activity and rest can help you make the most of your energy.

Fatigue can be more than simply feeling tired. Some people with Parkinson’s experience a lack of energy that can make physical activities, concentration and everyday tasks feel more demanding.

Rather than trying to push through everything at once, planning your day around your energy levels can help you continue doing the things that are most important to you.

Make the most of your energy

• Plan more demanding activities for times when you usually have the most energy.
• Break larger jobs into smaller tasks rather than trying to complete everything at once.
• Take short rests before you become completely exhausted.
• Sit down for activities when standing is unnecessary.
• Allow yourself extra time and avoid packing too much into one day.
• Keep some energy for activities you enjoy, not just household jobs and appointments.

Make night-time movement safer

If you regularly get up during the night, keep the route between your bed and bathroom clear and use suitable night lighting. Keep anything you may need – such as glasses, your phone or walking equipment – within easy reach of the bed.

Important

If fatigue, daytime sleepiness or poor sleep is having a significant effect on your daily life, discuss it with your GP or Parkinson’s specialist. Sleep problems can have different causes, and your healthcare team can help identify what may be contributing.

Eating, Drinking & Mealtimes

Good nutrition and staying hydrated are important for everyone. A few practical changes can make preparing and enjoying meals easier with Parkinson’s.

Parkinson’s can sometimes make preparing food, using cutlery or sitting comfortably through a meal more difficult. Some people may also experience changes with chewing or swallowing.

Taking your time and adapting your surroundings can help make mealtimes safer, more comfortable and more enjoyable.

Making mealtimes easier

• Give yourself plenty of time and try not to rush meals.
• Sit upright and comfortably with good support.
• Keep commonly used food and kitchen items within easy reach.
• Consider easy-grip or adapted cutlery if holding standard utensils becomes difficult.
• Use non-slip mats or suitable tableware if plates or cups tend to move.
• Ask for help with food preparation when you need it rather than becoming overtired before eating.

If eating or swallowing becomes difficult

Difficulty chewing or swallowing should not simply be accepted as part of Parkinson’s. If you regularly cough or choke when eating or drinking, feel that food is sticking, or notice an unexplained change in weight, tell your GP or Parkinson’s team. They may arrange an assessment with an appropriate specialist, such as a speech and language therapist or dietitian.

Important

Do not make major changes to your diet, the consistency of food or the way you take medication without appropriate professional advice. If you have concerns about nutrition, swallowing or how meals interact with your Parkinson’s medication, speak to your healthcare team.

Choosing Mobility Equipment & Getting the Right Support

The right equipment can help you conserve energy, move more safely and continue doing the things that are important to you.

Mobility needs can change over time, and there is no single piece of equipment that is right for everyone with Parkinson’s. What works well will depend on your balance, strength, coordination, home environment and lifestyle.

Try to think about equipment as a way of supporting your independence rather than as a sign that you are giving something up.

Different equipment for different needs

• Walking aids may provide additional support for shorter distances.
• Rollators can provide walking support and, on suitable models, somewhere to rest when needed.
• Wheelchairs can make longer outings more manageable when walking distance becomes limited.
• Powerchairs may provide greater independent mobility for people who find self-propelling a wheelchair difficult.
• Mobility scooters can help some people remain independent outdoors and travel greater distances without becoming exhausted.

Use equipment to extend your independence

Using a wheelchair or mobility scooter for longer journeys does not necessarily mean giving up walking. For some people, it means saving their energy for when they arrive – whether that is shopping, meeting friends or enjoying a day out.

Choosing equipment at the right time can help you continue doing more, rather than waiting until mobility difficulties prevent you from going out altogether.

Get the right advice

If your balance, walking or coordination has changed significantly, seek professional advice before choosing a new mobility aid. A physiotherapist or occupational therapist may be able to assess your needs, while an experienced mobility specialist can help you compare suitable equipment and ensure it is correctly adjusted for you.

Support, Confidence & Living Well

Living well with Parkinson’s is about adapting when you need to, finding the right support and continuing to make your own choices.

Parkinson’s affects everyone differently and your needs may change over time. Something that is difficult today may be made easier by changing your routine, adapting your surroundings or finding the right equipment and support.

You do not have to wait until everyday activities become unmanageable before asking for help. Getting advice early can often help you maintain your independence and confidence for longer.

Know where to turn for support

• Your GP or Parkinson’s specialist can help with changes in symptoms, treatment and medication.
• Physiotherapists can provide advice about movement, exercise, walking and balance.
• Occupational therapists can suggest ways to make everyday activities and your home easier to manage.
• Speech and language therapists can help with communication and swallowing difficulties.
• Parkinson’s support organisations can provide information, local support and opportunities to connect with other people.
• Family and friends can provide valuable practical and emotional support when you need it.

Independence can look different for everyone

Living independently does not mean having to manage everything alone. It means having the right support, confidence and choices to continue living life in the way that matters to you.

How First Choice Mobility can help

If you are considering mobility or daily living equipment, our experienced team can help you understand the different options available and find something appropriate for your individual needs. We believe the right equipment should help you do more, maintain your independence and live with greater confidence.

Please remember

This guide provides general information and practical ideas. It is not a substitute for individual medical or professional advice. If you are concerned about changes in your symptoms, mobility, balance, swallowing or ability to manage everyday activities, speak to your GP, Parkinson’s specialist or another appropriate healthcare professional.

Useful Links & Further Support

There is plenty of information and support available for people living with Parkinson’s, as well as their families, friends and carers.

Parkinson’s UK

Information and support covering everyday life with Parkinson’s, treatments, symptoms, equipment, local groups, benefits and support for families and carers.

Website:

www.parkinsons.org.uk

Free Helpline: 0808 800 0303

NHS – Parkinson’s Disease

NHS information about Parkinson’s, including symptoms, diagnosis, treatment and the support that may be available through healthcare services.

Website:

NHS Parkinson’s information

GOV.UK – Benefits & Financial Support

Information about disability-related financial support, including Personal Independence Payment (PIP), Attendance Allowance and other benefits and concessions.

Website:

Financial help if you’re disabled

Blue Badge Scheme

If walking or getting from your vehicle to your destination is difficult, you may be eligible for a Blue Badge. GOV.UK provides information about eligibility and how to apply.

Website:

Check Blue Badge eligibility

Here to help you stay independent

Whether you need advice about mobility scooters, wheelchairs, powerchairs, walking aids or everyday living equipment, our experienced team is here to help you find the right solution for your individual needs.

This guide is provided for general information only and is not intended to replace professional medical advice. Always speak to an appropriate healthcare professional if you have concerns about your health, symptoms or treatment.